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	<title>Hepatitis Archives - Award-Winning Writer and Graphic Designer</title>
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		<title>Chasing a Cure for Hepatitis C &#124; The Fix</title>
		<link>https://dorriolds.com/chasing-a-cure-for-hepatitis-c/?utm_source=rss&#038;utm_medium=rss&#038;utm_campaign=chasing-a-cure-for-hepatitis-c</link>
		
		<dc:creator><![CDATA[dorriolds]]></dc:creator>
		<pubDate>Tue, 17 Mar 2020 09:32:42 +0000</pubDate>
				<category><![CDATA[Addiction]]></category>
		<category><![CDATA[Health]]></category>
		<category><![CDATA[addiction]]></category>
		<category><![CDATA[drug addiction]]></category>
		<category><![CDATA[drugs]]></category>
		<category><![CDATA[Gilead]]></category>
		<category><![CDATA[Harvoni]]></category>
		<category><![CDATA[HCV]]></category>
		<category><![CDATA[Hep C]]></category>
		<category><![CDATA[Hepatitis]]></category>
		<category><![CDATA[Obamacare]]></category>
		<category><![CDATA[Olds News]]></category>
		<category><![CDATA[Ribavirin]]></category>
		<category><![CDATA[Viekira Pak]]></category>
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					<description><![CDATA[<p>When I quit drugs and drinking, I found out I had chronic persistent hepatitis C. I’d contracted it in 1978 when I was 17. As the years went by, my chances increased for developing cirrhosis, liver cancer, or liver failure. I might even need a liver transplant. I’d heard about interferon and its brutal side effects, including suicidal depression. I had HCV (hepatitis C virus) because I’d been so depressed as a teen, I shot drugs and shared needles in hopes I’d croak.</p>
<p>The post <a href="https://dorriolds.com/chasing-a-cure-for-hepatitis-c/">Chasing a Cure for Hepatitis C | The Fix</a> appeared first on <a href="https://dorriolds.com">Award-Winning Writer and Graphic Designer</a>.</p>
]]></description>
										<content:encoded><![CDATA[<h2>Hepatitis C Cure</h2>
<div><span style="font-family: -apple-system, system-ui, BlinkMacSystemFont, 'Segoe UI', Helvetica, Arial, sans-serif, 'Apple Color Emoji', 'Segoe UI Emoji', 'Segoe UI Symbol';">When I quit drugs and drinking, I found out I had chronic persistent hepatitis C. I’d contracted it in 1978 when I was 17. As the years went by, my chances increased for developing cirrhosis, liver cancer, or liver failure. I might even need a liver transplant. I’d heard about interferon and its brutal side effects, including suicidal depression. I had HCV (hepatitis C virus) because I’d been so depressed as a teen I shot drugs and shared needles in hopes I’d croak.</span></div>
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<div class="body">But, in addition to stirring up thoughts of killing myself, interferon would’ve meant six months of using needles to administer the drug. It had been nearly impossible to kick drugs and harder still to stay off them, so I was terrified that injecting drugs might steer me toward relapse. Interferon also had a puny 45% success rate, so I opted out.</div>
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<div class="body">A few years ago, I found a primary care physician specializing in infectious diseases and staying up-to-date on HCV treatments. He was waiting and watching for Harvoni (ledipasvir/sofosbuvir) to go on the market. “Now we’ll be able to cure you within 90 days,” he’d said. “And with only one daily pill.”</div>
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<div class="body">Hepatitis C Virus is divided into six genotypes. I have genotype 1, the most common type in the US and the most difficult to treat. In October 2014, when the FDA approved Gilead’s miracle drug, Harvoni, my insurance company refused to pay for it—three months of Harvoni costs upwards of $95,000. I was told I wasn’t sick enough. They were willing to gamble with my health, but my doctor wasn’t. He and his staff submitted appeal after appeal. I switched insurance companies three times, hoping to get Harvoni coverage, but to no avail.</div>
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<div class="body">Finally, I received an okay for AbbVie’s Viekira Pak with ribavirin. It costs $12,000 less than Harvoni and has a similar cure rate (97%), but Viekira Pak comes with a frightening warning: “It may cause severe liver problems.” My doctor reassured me that the treatment was worth it and that there would be no side effects.</div>
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<div>My doctor reassured me that the treatment was worth it. He also said there’d be no side effects. He knew how scared I was. If I’d known how difficult taking the medication would be, I would’ve chickened out. That would’ve been stupid, so I’m glad I took the meds and survived the awful experience.</div>
<div class="body">My three months on this cocktail have included severe gastrointestinal issues, including nausea, constipation, and diarrhea. I’ve had skin rashes and chills, confusion, forgetfulness, high anxiety and depression. The worst was the exhaustion, which often made it impossible for me to work. As a freelancer, no work equals no pay.</div>
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<div><a href="https://dorriolds.com/aids-hepatitis-c-love-story/">See Also: He Had AIDS, and I Had Hepatitis C: A Love Story</a></div>
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<div class="body">The ribavirin caused anemia, and I’ve had to stay in bed most days, not knowing if it was day or night. Instead of one Harvoni pill, I’ve had to take three Viekira Pak pills (two different kinds) with three ribavirin pills with breakfast and one Viekira Pak pill plus two ribavirin pills with dinner. If my husband hadn’t kept me on schedule, I would’ve slept through most of the doses.</div>
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<div class="body">Even when I set my alarm, I couldn’t move most of the time. Thank goodness I have a mate who kept track of the pills and woke me up at the correct intervals to bring food and drug cocktails. He also shopped, cooked, did laundry, vacuumed, massaged my aching legs, and took over full-time care of our dog. Without a support system, I don’t know how anyone could manage.</div>
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<h3>Hepatitis C Blood Tests</h3>
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<div class="body">On the upside, my blood tests showed that my viral load went from 1,000,000 from the time I began treatment to 20 at the end of the first month. Now, after a total of three months, it is at zero. My liver inflammation has gone way down as well, and my doctor assures me that my side effects will cease now that I’ve finished the meds. Still, I wish I could’ve been treated with Harvoni and had known about the multiple class action lawsuits against insurance companies for not covering it.</div>
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<div class="body">Eleanor Hamburger is a lawyer at Sirianni Youtz Spoonemore Hamburger, the Seattle firm litigating two <a href="http://static1.squarespace.com/static/53c6d74ee4b0d369d70050a3/t/56b1469bab48de1363b4bd69/1454458524705/Press+Release-020216.pdf" target="_blank" rel="noopener">class action lawsuits</a> against Washington state health insurers Group Health Cooperative and BridgeSpan, a subsidiary of Regence BlueShield. Hamburger told me, “We had people approach us who had been denied Harvoni. In most states, there’s just a handful of lawyers who do cases involving denials of treatment that people need by their insurance companies.”</div>
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<div class="body">She explained, “Here’s the problem. The insurance companies and payers, like Medicaid, are putting patients in the middle of this tug-of-war with pharmaceutical companies. Payers, whether it’s Medicaid or private insurance, have a responsibility to pay when all the requirements for coverage are met. The whole point of health insurance, and the safety net provided by Medicaid, is to be there with medically necessary treatment when those terms and conditions are met.</div>
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<div class="body">The fact that it’s expensive requires the payers to take action against the pharmaceutical companies to get the right price. What clearly should not happen and what has been occurring is, instead of pushing on that process to get to a fair price between pharmaceutical companies and insurance companies and payers, the payers have been saying, ‘No, we’re just not going to give coverage.’ The ones that get harmed are the patients. It’s wrong.”</div>
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<h3><span style="font-family: -apple-system, system-ui, BlinkMacSystemFont, 'Segoe UI', Helvetica, Arial, sans-serif, 'Apple Color Emoji', 'Segoe UI Emoji', 'Segoe UI Symbol';">Hep C Hadn’t Made Me Sick Enough?</span></h3>
<div>When I told her, “Insurance companies told me I wasn’t sick enough,” she raised her voice in anger. “No one should be forced to walk around with a viral time bomb in their body, gambling on the chance that they’re not going to get sicker while they’re waiting. When you pay your premium, the whole point of insurance is transferring the risk of having that catastrophic cost to the insurance company.</div>
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<div class="body">At the end of the year, you don’t get your money back if you haven’t needed anything expensive for your health insurance! The same is true if you have a year when you’ve got high healthcare costs. Insurance companies can’t suddenly say, ‘Well, even though you’re entitled to coverage under the terms and conditions of our policy, we’re not going to cover it for everyone because it’s too expensive.’ The policies do not allow insurance companies to wait around saying, ‘Oh, but it’s so expensive we have to ration it.’”</div>
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<div class="body">Hamburger led me to Michael Ninburg, the executive director at the Hepatitis Education Project (HEP), a nonprofit whose mission is to provide support, advocacy, and services for those affected by HCV. He was eager to discuss updates regarding the Washington state class action lawsuits. The lawsuits allege that denying treatment to HCV patients unless they demonstrated significant liver damage was illegal and improper.</div>
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<div class="body">“We applaud the Regence group,” said Ninburg. “They’re one of the largest insurers in the Pacific Northwest, and as of February 16, Regence will conform to recommendations of the <a href="http://www.hcvguidelines.org/" target="_blank" rel="noopener">HCV guidelines</a> issued by <a href="http://www.idsociety.org/Index.aspx" target="_blank" rel="noopener">IDSA</a> and <a href="http://www.aasld.org/" target="_blank" rel="noopener">AASLD</a>.”</div>
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<div class="body">He said, “This change is important to HCV patients because Regence and its affiliated pharmacy benefit manager, Omega Rx, removed all previous restrictions on coverage.”</div>
<div class="body">Ninburg then put me in touch with Sean Hemmerle, a 43-year-old ex-heroin addict and ex-con who is now a full-time college student in Olympia. Hemmerle served time in prison “for a robbery related to my heroin use,” he said. He was diagnosed with HCV in 2010 at Harborview Medical Center in Seattle while undergoing surgeries “to repair wounds from injecting black tar heroin.”</div>
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<div class="body">Hemmerle said he was sure he’d gotten Hepatitis C Virus from “sharing cookers because I’ve never shared a needle in my life.” When he was on his way to prison, he said, “I looked forward to receiving interferon while I was locked up. I figured it would be an opportune time to go through all the BS associated with it. Unfortunately, the prison medical staff, once they finally got my genotype and viral count, told me that I had too little in my sentence left to begin.”</div>
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<div class="body">“When I got out [of prison],” Hemmerle said, “Obamacare happened, and I got a primary care provider in the winter of 2013, who referred me to the liver clinic at Harborview in the summer of 2014. Once the liver clinic saw me, they sent a script for 12 weeks of Harvoni to DSHS [Washington State Department of Social and Health Services]. DSHS denied it, but the clinic appealed.</div>
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<div class="body">DSHS denied it again. The clinic then sent my script to the patient assistance program at Harborview, which contacted Gilead. Once the patient assistance program got involved, it was only a week before I received my first month of Harvoni. I completed my 12 weeks in July 2015 with absolutely no side effects, and my viral load was undetectable by week 5.”</div>
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<div class="body">He added, “I have loads of survivor’s guilt because I lucked out—literally days after approving me, Gilead began approving only levels 3 and 4 for patient assistance for Harvoni. Some HMOs, like Group Health, have recently begun approving 1s and 2s for treatment.”</div>
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<div class="body">While the drug companies battle it out in a price war, Merck’s rock-&#8216;n&#8217;-roll-sounding pill, Zepatier (elbasvir/grazoprevir), became available January 29 for $54,600 per three-month treatment. Like the other meds, Zepatier has a cure rate of 97%. Due to its lower price tag, insurance companies are more likely to cover it. Unfortunately, Zepatier’s side effects are similar to those I’ve experienced on Viekira Pak with ribavirin.</div>
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<div class="body">Gilead has earned approximately $20 billion for HCV treatment, and AbbVie has earned billions from its Viekira Pak. It’s too soon to know how much money Merck will earn from Zepatier.</div>
<div class="body">Regulus Therapeutics is the newest threat to Gilead’s profits. On February 17, Regulus announced test results showing that RG 101 administered two times in one month, along with a month’s worth of Harvoni, can reduce an HCV cure to a total of four weeks. Regulus is working on testing RG 101 with GlaxoSmithKline’s NS5B inhibitor, which would eliminate Harvoni. If that pans out, Gilead will suffer, but insurance companies will benefit. Hopefully, that means that more people with HCV will receive coverage.</div>
<p>The post <a href="https://dorriolds.com/chasing-a-cure-for-hepatitis-c/">Chasing a Cure for Hepatitis C | The Fix</a> appeared first on <a href="https://dorriolds.com">Award-Winning Writer and Graphic Designer</a>.</p>
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		<post-id xmlns="com-wordpress:feed-additions:1">7509</post-id>	</item>
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		<title>He Had AIDS and I Had Hepatitis C: A Love Story</title>
		<link>https://dorriolds.com/aids-hepatitis-c-love-story/?utm_source=rss&#038;utm_medium=rss&#038;utm_campaign=aids-hepatitis-c-love-story</link>
		
		<dc:creator><![CDATA[dorriolds]]></dc:creator>
		<pubDate>Wed, 01 Jun 2016 07:35:19 +0000</pubDate>
				<category><![CDATA[Addiction]]></category>
		<category><![CDATA[Essay]]></category>
		<category><![CDATA[New York City]]></category>
		<category><![CDATA[Olds News]]></category>
		<category><![CDATA[Writing blog]]></category>
		<category><![CDATA[addiction]]></category>
		<category><![CDATA[AIDS]]></category>
		<category><![CDATA[essay]]></category>
		<category><![CDATA[Hep C]]></category>
		<category><![CDATA[Hepatitis]]></category>
		<category><![CDATA[Hepatitis C]]></category>
		<category><![CDATA[Love]]></category>
		<category><![CDATA[Marie Claire]]></category>
		<category><![CDATA[nyc]]></category>
		<category><![CDATA[Writing]]></category>
		<guid isPermaLink="false">https://www.dorriolds.com/?p=7652</guid>

					<description><![CDATA[<p>Published by Marie Claire AIDS + Hepatitis C = Love How we found each other amidst addiction, ongoing sobriety, and life-threatening illness. By Dorri Olds &#8220;One girlfriend slipped a mickey into my coffee,&#8221; he said, &#8220;and when I passed out she poured lighter fluid on me and all my belongings and torched me.&#8221; We were sitting at ... <a title="He Had AIDS and I Had Hepatitis C: A Love Story" class="read-more" href="https://dorriolds.com/aids-hepatitis-c-love-story/" aria-label="More on He Had AIDS and I Had Hepatitis C: A Love Story">Read more</a></p>
<p>The post <a href="https://dorriolds.com/aids-hepatitis-c-love-story/">He Had AIDS and I Had Hepatitis C: A Love Story</a> appeared first on <a href="https://dorriolds.com">Award-Winning Writer and Graphic Designer</a>.</p>
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										<content:encoded><![CDATA[<p><a href="http://www.marieclaire.com/sex-love/features/a20736/dating-a-man-with-aids/" target="_blank" rel="noopener">Published by Marie Claire</a></p>
<h1>AIDS + Hepatitis C = Love</h1>
<h2>How we found each other amidst addiction, ongoing sobriety, and life-threatening illness.</h2>
<figure id="attachment_7656" aria-describedby="caption-attachment-7656" style="width: 970px" class="wp-caption aligncenter"><img data-recalc-dims="1" decoding="async" loading="lazy" class="wp-image-7656 size-full" src="https://i0.wp.com/dorriolds.com/wp-content/uploads/2016/06/landscape-1464366230-untitled-1.jpg?resize=825%2C413&#038;ssl=1" alt="Hepatitis C" width="825" height="413" srcset="https://i0.wp.com/dorriolds.com/wp-content/uploads/2016/06/landscape-1464366230-untitled-1.jpg?w=980&amp;ssl=1 980w, https://i0.wp.com/dorriolds.com/wp-content/uploads/2016/06/landscape-1464366230-untitled-1.jpg?resize=300%2C150&amp;ssl=1 300w, https://i0.wp.com/dorriolds.com/wp-content/uploads/2016/06/landscape-1464366230-untitled-1.jpg?resize=768%2C384&amp;ssl=1 768w, https://i0.wp.com/dorriolds.com/wp-content/uploads/2016/06/landscape-1464366230-untitled-1.jpg?resize=870%2C435&amp;ssl=1 870w, https://i0.wp.com/dorriolds.com/wp-content/uploads/2016/06/landscape-1464366230-untitled-1.jpg?resize=600%2C300&amp;ssl=1 600w, https://i0.wp.com/dorriolds.com/wp-content/uploads/2016/06/landscape-1464366230-untitled-1.jpg?resize=480%2C240&amp;ssl=1 480w" sizes="auto, (max-width: 825px) 100vw, 825px" /><figcaption id="caption-attachment-7656" class="wp-caption-text"> Image: Getty Images via Marie Claire</figcaption></figure>
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<div class="author-byline__authors" style="text-align: center;">By <span class="author-byline__author-name"><a class="link author-byline__link" href="https://www.marieclaire.com/author/dorri-olds/" target="_self" rel="author noopener">Dorri Olds</a></span></div>
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<p class="dropcap body-el-text standard-body-el-text">&#8220;One girlfriend slipped a mickey into my coffee,&#8221; he said, &#8220;and when I passed out she poured lighter fluid on me and all my belongings and torched me.&#8221;</p>
<p class="body-el-text standard-body-el-text">We were sitting at Le Singe Vert in Chelsea. As the waiter strolled over I studied Steve&#8217;s face. He was a blond Keith Richards type with deep lines and sharp features.</p>
<p class="body-el-text standard-body-el-text">&#8220;I woke up surrounded by flames,&#8221; Steve said, &#8220;and escaped with only this scar on my neck.&#8221; He pointed to a small spot above his clavicle. Then he ordered our dinner in fluent French—an odd contrast to his street-life tale.</p>
<p class="body-el-text standard-body-el-text">I came out of a blackout in my apartment on MacDougal Street and hallucinated bugs scurrying across the floor. I thought my trashcan was on fire. I&#8217;d torn up my expensive painting portfolio and gouged suicidal song lyrics with a ballpoint pen into shreds of the destroyed art. I called my cousin who rushed me to rehab before I could change my mind.</p>
<p class="body-el-text standard-body-el-text">Steve could match this. When the waiter left, Steve said, &#8220;Another woman sent her brother to cave my skull in with a claw hammer.&#8221; He placed my fingers into an indent under his thick hair, a crater the size of half a lime. He chuckled, &#8220;I got a hole in my head.&#8221;</p>
<p class="body-el-text standard-body-el-text">I wondered, &#8220;Is this a date?&#8221;</p>
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<h3>&#8220;I had confessed in AA that my odyssey began at age 11 with pot, then quickly escalated to shooting cocaine.&#8221;</h3>
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<p>We lived a block apart and ran into each other at movie theaters and on the street. He&#8217;d say, &#8220;Hey, Bird, what&#8217;s the word?&#8221; Charmed by his hipster lingo, I always felt free to launch into complaints about my boyfriend du jour. I burned through relationships—one per year. It seemed hopeless. I was depressed and bewildered about why I picked flawed men who were afraid of intimacy. My focus on their shortcomings prevented me from seeing my own.</p>
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<p>A week before our conversation in the restaurant, an acquaintance and I ran into Steve.</p>
<p>&#8220;So how&#8217;s it going, home slice?&#8221; Steve said.</p>
<p>&#8220;Sad,&#8221; I said. &#8220;Another breakup.&#8221;</p>
<p>&#8220;Too bad you&#8217;re too young for me,&#8221; he said.</p>
<p>My friend piped up: &#8220;She&#8217;s not that young.&#8221;</p>
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<p>So there we sat in the chic eatery, trading life stories while Steve stared at me instead of his <em>coq-au-vin</em>. I&#8217;d worn a plunging neckline and tight jeans, hoping for reassurance my looks weren&#8217;t gone. My last boyfriend said I was lucky to nab him. &#8220;Forty-year-old guys aren&#8217;t attracted to women over 35,&#8221; he&#8217;d said. But Steve stared at me like I was Häagen-Dazs.</p>
<p>When the waiter came back I reached for cash but Steve said, &#8220;It&#8217;s on me,&#8221; and pulled out his wallet. &#8220;This <em>is</em> a date,&#8221; I thought.</p>
<p>On the way home all I could think about was kissing Steve. While walking along Seventh Avenue, I stepped onto a curb so my five-feet-two frame was face to face with his six-feet. &#8220;Is it okay if I kiss you?&#8221; I asked. Without waiting for an answer I leaned in and did just that. For a guy whose face was all sharp corners, his lips were surprisingly soft. I wanted to stay like that but Steve pulled back.</p>
<p>&#8220;Whoa,&#8221; he said. &#8220;I don&#8217;t have time for a relationship. Staying healthy is a full-time job and I spend most of my time helping guys quit drinking and drugging. I also treasure alone time.&#8221;</p>
<p>Instead of the repellent he meant it to be, it made me feel safe. It was a relief knowing he wouldn&#8217;t be all over me like other broken men I&#8217;d been with.</p>
<p>&#8220;I was diagnosed with AIDS in 1983,&#8221; he said.</p>
<p>&#8220;I know,&#8221; I said. &#8220;I&#8217;ve heard you at meetings. But you always seem fine.&#8221;</p>
<p>&#8220;That&#8217;s because I work at it. I see doctors all the time and I&#8217;m on every new med available.&#8221;</p>
<p>I had been diagnosed with hepatitis C—a virus that attacks the liver. But even in this moment, I kept that to myself.</p>
<p>We said goodnight and I was left with the realization that my romances always began when a guy seemed uninterested. If anyone pursued me, I bolted. Spotting flaws that needed fixing was catnip. Feeling superior boosted my low self-esteem, and solving a man&#8217;s problems seemed a guarantee I could turn him into who I wanted; then he&#8217;d be grateful and never leave.</p>
<figure>
<blockquote><p>&#8220;I woke up panicked with a fairly ignorant, yet alarming, question: Could I get AIDS from saliva?&#8221;</p></blockquote>
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<p>But the next morning, I woke up panicked with a fairly ignorant, yet alarming, question: Could I get AIDS from saliva? I picked up the phone.</p>
<p>&#8220;Hello?&#8221; said the volunteer at <a class="hawk-link-parsed" href="http://www.gmhc.org/" target="_blank" rel="noopener" data-analytics-id="inline-link" data-url="http://www.gmhc.org/" data-hl-processed="none" data-component="Inline Links" data-custom-tracking-id="6789776444473753648" data-hawk-tracked="hawklinks" data-google-interstitial="false" data-label="Gay Men's Health Crisis">Gay Men&#8217;s Health Crisis</a>.</p>
<p>&#8220;I have a crush on a guy who has AIDS. How can I stay safe?&#8221;</p>
<p>He explained risk factors, T-cells, and viral load. I was too nervous to follow everything, but understood when he said, &#8220;Saliva doesn&#8217;t transmit the virus—it needs a direct input into the bloodstream.&#8221; Elated, I called my friend who worked for Doctors Without Borders.</p>
<p>&#8220;How can you be so selfish?&#8221; she said. &#8220;He has a compromised immune system. There&#8217;s a <em>much </em>higher risk you&#8217;ll give him hepatitis C. He could die. Didn&#8217;t you think about that?&#8221;</p>
<p>Never occurred to me.</p>
<p>&#8220;You have to tell him,&#8221; she said. But I was afraid he&#8217;d scurry off—seemed he was already looking for an excuse.</p>
<p>I was 28 and single back when I was diagnosed with hepatitis C and thought you got it from shellfish. Turns out it&#8217;s a horrible disease</p>
<figure style="width: 157px" class="wp-caption alignright"><img data-recalc-dims="1" decoding="async" loading="lazy" src="https://i0.wp.com/cdn.mos.cms.futurecdn.net/iprznaioGcCjf37yXV9Rr6-320-80.jpg?resize=167%2C223&#038;ssl=1" sizes="auto, (min-width: 710px) 670px, calc(100vw - 30px)" srcset="https://cdn.mos.cms.futurecdn.net/iprznaioGcCjf37yXV9Rr6-1920-80.jpg 1920w, https://cdn.mos.cms.futurecdn.net/iprznaioGcCjf37yXV9Rr6-1600-80.jpg 1600w, https://cdn.mos.cms.futurecdn.net/iprznaioGcCjf37yXV9Rr6-1280-80.jpg 1280w, https://cdn.mos.cms.futurecdn.net/iprznaioGcCjf37yXV9Rr6-1024-80.jpg 1024w, https://cdn.mos.cms.futurecdn.net/iprznaioGcCjf37yXV9Rr6-768-80.jpg 768w, https://cdn.mos.cms.futurecdn.net/iprznaioGcCjf37yXV9Rr6-415-80.jpg 415w, https://cdn.mos.cms.futurecdn.net/iprznaioGcCjf37yXV9Rr6-360-80.jpg 360w, https://cdn.mos.cms.futurecdn.net/iprznaioGcCjf37yXV9Rr6-320-80.jpg 320w" alt="Ribbon, Red, Carmine, Coquelicot, Costume accessory," width="167" height="223" data-original-mos="https://cdn.mos.cms.futurecdn.net/iprznaioGcCjf37yXV9Rr6.jpg" data-pin-media="https://cdn.mos.cms.futurecdn.net/iprznaioGcCjf37yXV9Rr6.jpg" /><figcaption class="wp-caption-text">Image: Urbano Delvalle</figcaption></figure>
<p>, usually chronic, causing cirrhosis. The liver erodes.</p>
<p>But nothing ever happened. My tests still show slightly elevated liver enzymes that confirm I have the virus—but nothing more. I asked every doctor if I caught it from sex. All of them said that was highly unlikely based on my history of sharing dirty needles.</p>
<p>Steve knew my drug stories but I&#8217;d never shared my health problem.</p>
<p>&#8220;You&#8217;re crazy,&#8221; a friend said. &#8220;You just got out of a relationship with a sociopath. Hello? Do you hear yourself? Steve is a heroin addict with AIDS.&#8221;</p>
<p>Before I could say, &#8220;<em>ex</em>-heroin addict,&#8221; she&#8217;d hung up the phone.</p>
<p>My sister said, &#8220;Here we go again.&#8221;</p>
<p>&#8220;You&#8217;re kidding, right?&#8221; said my cousin. &#8220;He&#8217;s 18 years older—you&#8217;ll be pushing him around in a wheelchair.&#8221;</p>
<p>My Upper East Side pal said, &#8220;I bet he stole, lied, and broke his parents&#8217; hearts.&#8221;</p>
<p>But she could have also been talking about me: I too stole, lied, and broke my parents&#8217; hearts.</p>
<p>After a few more days, an email from Steve popped up. &#8220;Wanna go for a bike ride along the West Side Highway?&#8221;</p>
<p>&#8220;Sure,&#8221; I wrote back.</p>
<figure>
<blockquote><p>&#8220;I asked every doctor if I caught it from sex. All of them said that was highly unlikely based on my history of sharing dirty needles.&#8221;</p></blockquote>
</figure>
<p>We rode down the bicycle path and stopped on the grass by Battery Park City. Steve said, &#8220;Look, I can&#8217;t do relationships and you&#8217;ll leave me for a younger dude. I&#8217;m just an old guy with AIDS and one more failed romance will kill me.&#8221;</p>
<p>&#8220;Oh, boo hoo,&#8221; I blurted out. &#8220;Quit feeling so sorry for yourself. You&#8217;re not the only one with health problems. I have hepatitis C.&#8221; He seemed startled at first but then pleased.&#8221;Why are you smiling?&#8221; I asked.</p>
<p>&#8220;You treated me like a regular person. Most people walk on eggshells, afraid to upset the poor guy with AIDS.&#8221;</p>
<p>On the third anniversary of our first date, we walked to a jewelers on 34th Street to buy me an engagement ring. A year after that, he bought us wedding bands. It still gives me a daily lift to stare at my rings.</p>
<p>Steve continues to thrive on his medication. His AIDS virus is now at undetectable levels. And my health is improving too: After a year of fighting with my insurance company, they finally paid for the new expensive meds that cure hepatitis C in three months.</p>
<p>We take our daily concoction of pills together at breakfast and hug. There&#8217;s a spot on Steve&#8217;s chest near his shoulder—just to the side of that little burn scar—where my cheek slides in perfectly to rest.</p>
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<div class="credit">(Image credit: Michael Abramson)</div>
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<p>The post <a href="https://dorriolds.com/aids-hepatitis-c-love-story/">He Had AIDS and I Had Hepatitis C: A Love Story</a> appeared first on <a href="https://dorriolds.com">Award-Winning Writer and Graphic Designer</a>.</p>
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